A Benefit For Spinal Muscular Atrophy

A few months ago, I did a review for the Flexi-clip.  Emily and I loved them and have been wearing ours often.  I worked with Holly, an independent Lilla Rose consultant.   She is so sweet and was so nice to work with.   Last week, she emailed me about a promotion she is holding during the month of July.  I would like to share it with you since the cause is so worth while.

Holly writes:

I wanted to let you know that I am going to be doing a special promotion during the month of July for a very special charity.  Before becoming a work at home mom, I was a classroom teacher along with my friend, Victoria Strong.  Victoria’s daughter, Gwendolyn, was born with a horrible disease called Spinal Muscular Atrophy (SMA).  It affects 1 in 6,000 babies (1 in 40 adults are carriers of the gene that causes SMA) and it is the number 1  killer of infants under age 2.  There is no treatment and there is no cure.  Gwendolyn has the most severe type of the disease, which claims the life of 80% of affected babies before their first birthday.  You may remember hearing about SMA from reading about another baby, Avery, who died at 6 months old and became known as the baby with a “Bucket List”.

At age 4, Gwendolyn’s life is a miracle.  Her parents have created a non-profit (The Gwendolyn Strong Foundation) and have become advocates for raising awareness of SMA and funds to support research to find a cure (it is anticipated that a cure or treatment will be found within 5 years, with adequate funding.)

To help support them in their effort, I am sponsoring an online fundraising party for their foundation during the month of July.  I will be giving 100% of my commission to their non-profit organization.  I have set up a special link for their fundraiser here: http://www.lillarose.biz/parties/660.

Holly is trying to raise as much money and awareness for SMA through her Lilla Rose business.  She is willing to offer an extra bonus just for my readers.. if you place an order of three or more clips, Holly will send you a gift certificate for a free Lilla Rose product of their choice (up to a $16 value).

Let’s help little Gwendolyn and other children who are affected by this terrible disease by purchasing a beautiful Lilla Rose Flexi-clip or any of her other adorable accessories!

Disclosure:  I am bringing this information to my readers and was not compensated to write this review.  All opinions are my own.

Pin It